How to raise the red flag

When should you suspect endometriosis? And how do you refer a patient on? Should your first port of call be an endometriosis specialist… or someone else? And how should you follow up?

To save time in your busy day, we’ve summarised NICE’s official guidance on diagnosing and managing endometriosis1 below.

The endometriosis diagnosis pathway

Symptoms to look out for

Suspect endometriosis with 1 or more of:

Urinary symptoms (period-related)

Infertility

Deep pain during/after sex

Gastrointestinal symptoms (period-related)

Period-related pain

Chronic pelvic pain

Discuss: individual background and needs

Abdominal and pelvic examination

Where to raise the red flag

Gynaecology service:

Severe, persistent or recurrent symptoms

Pelvic signs of endometriosis

If fertility is a priority:

MDT and fertility specialist involvement

Also see: Fertility is a priority guidelines

Specialist endometriosis service:

Suspected or confirmed deep endometriosis involving the bowel, bladder or ureter

Paediatric & adolescent gynaecology service:

For those aged 17 and under

Explore the available tests

Transvaginal ultrasound

If transvaginal scan is not appropriate

Transabdominal ultrasound

Laparoscopy

Considerer even if ultrasound is normal

Help end the wait for a diagnosis of endometriosis

Currently, people wait around eight years for an endometriosis diagnosis2. When you consider the debilitating symptoms – the crippling pelvic pain, the heavy periods, the extreme exhaustion3-5 – this is simply too long for your patients to go without support.

But together with healthcare professionals across the UK, you have the power to change this. You have the power to make life so much better for your patients with a cervix of reproductive age. Simply listen out for the red flags.

Endometriosis is more than pelvic pain. More than heavy periods. Do you know all the red flags?

Find out more

References:

  • National Institute for Health and Care Excellence. 2017. Endometriosis: Diagnosis and Management. [NICE Guideline No.73]. Available from: https://www.nice.org.uk/guidance/ng73. [Accessed Feb 2024].
  • All Party Parliamentary Group on Endometriosis (APPG). Endometriosis in the UK: time for change. APPG on Endometriosis Inquiry Report 2020. Available from: https://www.endometriosis-uk.org/sites/default/files/files/Endometriosis%20APPG%20Report%20Oct%202020.pdf. [Accessed Feb 2024].    
  • National Institute for Health and Care Excellence. 2017. Endometriosis: Diagnosis and Management. [NICE Guideline No.73]. Available from: https://www.nice.org.uk/guidance/ng73. [Accessed Feb 2024].
  • Becker K et al. Real world data on symptomology and diagnostic approaches of 27,840 women living with endometriosis. Sci Rep. 2021 Oct 14;11(1):20404.
  • NHS. Endometriosis. Available from: https://www.nhs.uk/conditions/endometriosis/. [Accessed Feb 2024].

Welcome to Is It Endo?

This awareness campaign is initiated and funded by Gedeon Ritcher. This website is intended for healthcare professionals in the UK.

This site is here to help people spot the red flags of endometriosis. But first, to help us get you where you belong, answer us this:

Are you a UK-based healthcare professional?

No